Shannon Larratt, founder of BMEzine and a pioneer of extreme body modification, is dead. Based on a posthumous blog post, it sounds like suicide. Larratt had suffered for years from an unspecified degenerative disease he described as genetic, and had been detailing his struggles with chronic pain on his blog in recent months.
His death follows the passing last year of two other body modification legends: ManWoman and StalkingCat
From Larratt’s farewell letter:
Thank you to everyone who made my life wonderful. I love you all. I wish there had been more of it, and I wish I had more to give. I’m sorry there is so much unfinished, so much left to do, but I am glad to know many wonderful people who will complete it. Last minute reflections and bits of advice… seize every opportunity that’s in front of you and live life to the fullest. Even with everything I’ve done, there is so much more I wish I’d squeezed in. Don’t let a single day (well, maybe a single day) be idle. Have every adventure you can, and explore every street — although treat the one-way streets with caution. Don’t fritter you life away into television, random browsing, and pointless substance abuse (I have at times been guilty of all of these) — although remember there are valid uses for them, both for growth and entertainment. Have passion about the future, and in the present. Especially if you’re young, push your education and your skills to their limits on every level. Don’t just graduate highschool, get a degree, get a doctorate if you can. I know these things aren’t for everyone, they they are for most, and they also open doors to some of the most special adventures. Even if you can’t afford proper schooling there are many, many ways to learn, free courses to volunteering, and so on. Value your health, and the health of our planet, and strive beyond its borders. We have such a glorious future, but never forget that your part in that future could end at any moment, so live a life that you can be pround of. And of course love and treat each other well.
In “real me” world, I had a big doctor’s appointment earlier in the week, the sort where I got to wear one of those barebacked robes that shows off my butt while a couple doctors prodded and examined me in various ways. It was good because it escalated me further up the various “expert” or “specialist” ladders — exactly the sort of people I need to be talking to in the hope that someone will come up with some long-shot therapy or treatment that helps treat the myopathy, or at least reduces the pain. Didn’t go that way though, which I’m used to as it never does. Every doctor that gets added to the mix simply confirms the diagnosis, agrees that it can’t be treated (but that they’ll “think about it” and consider who else we can discuss it with), and often throws another problem into the mix as well. This week it we first confirmed the progression of the nerve damage from my “tumor” (a benign bone growth the size of a tangerine, not cancerous so tumor isn’t really the right word I think) biopsy and removal, as that neuropathy came back after changing pain treatments a month or two ago, and that I have abnormal reflex response in my legs. None of that is particularly surprising to me, but I was surprised to find out that my spinal cord is degenerating, which is causing additional problems in mobility and generally being able to control my body in addition to the muscle decay itself. I am guessing that this nerve degeneration is part of what’s causing complications with my heart and breathing.